Waldenstrom Macroglobulinemia (WM) is not curable, which means most patients will either reach the relapsed or refractory stage at some point in their journey. Patient Power spoke with Shayna Sarosiek, MD, hematologist/oncologist from at the Bing Center for Waldenström’s Macroglobulinemia at Dana-Farber Cancer Institute in Boston, to share what reaching these stages mean for WM patients.

As many as 50% of people at the time of their Waldenstrom macroglobulinemia (WM) diagnosis won’t need drug therapy for a number of years. We spoke with Shayna Sarosiek, MD, hematologist/oncologist from at the Bing Center for Waldenström’s Macroglobulinemia at Dana-Farber Cancer Institute in Boston, to share what “supportive treatments” could help in the meantime.

We want YOU to join our Jimmy FundRaiser community! The Dana-Farber Community Fundraising Event (CFE) program is where community members hold their own fundraisers or events on behalf of Dana-Farber and the Jimmy Fund. Fundraisers range from bake sales to hiking mountains, walking a 5k, and holding a virtual cooking class. Holding a fundraiser can be an outlet for individuals or families who want to take an “action” towards supporting a loved one, remembering a loved one, or fighting their own fight against cancer.

I first met Zach in 2004 when I joined the Bing Center as a volunteer. He was managing clinical trials, and immediately became my "go-to" person when I needed help or advice on any technical issue. Zach created the first WM Workshop website, and then taught me how to maintain it. I was able to build on that knowledge to create other websites.

On behalf of the International Waldenstrom's Macroglobulinemia Foundation (IWMF), the Lymphoma Hub was pleased to speak with Zachary Hunter, Dana-Farber Cancer Institute, Boston, US. We asked, What insights can multi-omics provide into the mechanism of disease progression in Waldenstrom’s macroglobulinemia (WM)?

Dear Fellow Cancer Patient: As I believe in universal love for ALL, I’m reaching out to you, whether we have met or not, to invite you to join me in embracing the concept of medical miracles no matter what kind of cancer you have.

From Bing-Neel Co-Leader & Lifeline Volunteer, Julie Davidson: "The Bing-Neel Support Group just had our Spring meeting. We featured a wonderfully informative video by Dr. Shayna Sarosiek, senior physician at the Dana-Farber Cancer Institute’s Bing Center for Waldenstrom’s Macroglobulinemia.

We invited Canadian medical professionals to listen to Dr. Treon of the DFCI.  (There were 2 sessions - EST & PST)  He provided a very thorough update on the state of WM and its treatment.

Consensus panel reports from the 11th International Workshop on Waldenstrom's Macroglobulinemia.

Researchers at Dana-Farber have put together a data atlas that includes a range of genomic, transcriptomic, epigenetic, and clinical data from patients and healthy donors to try to understand familial WM.